aaronki1995
aaronki1995
| Forum role | Member since | Last activity | Topics created | Replies created |
|---|---|---|---|---|
| Member | Jan 23, 2018 (8 years) |
- | 1 | 0 |
- Forum role
- Member
- Member since
Jan 23, 2018 (8 years)
- Last activity
- -
- Topics created
- 1
- Replies created
- 0
Bio
I am a miracle, or at least that is what they tell me. But I see myself as just an ordinary kid with some problems.
My mom is helping me write this because she knows the facts, but the feelings and other stuff is from me.
My name is Aaron and I am 22 years old. I was born on November 27, 1995, but the thing is, I wasn't supposed to be born until March 1996. I was born 3 & 1/2 months early.
When my mom went to the hospital no one believed her that she was in labor, so they didn't try to stop it, but she was and just a short time after she arrived they had to rush her into the operating room and deliver me.
I was tiny, I only weighed 899 grams and was just about 12 inches long. My mom says my eyes were sealed shut like a kittens, and my skin was translucent.I didn't even have eye lashes yet.
The doctors told my mom and dad that I probably wouldn't survive, my chances were so small that they couldn't even give them a percentage. They didn't know that I was such a fighter.
I spent 3 months in the hospital and had a lot of problems. I had surgery on my heart, my eyes, my hernias, my esophagus, I had blood in my brain, and I couldn't breathe or eat on my own. I was hooked up to all kinds of machines that helped me breathe, and fed me, and made sure my heart was beating.
I was given a lot of medicine too.
But then one day I was well enough to go home. I was still on machines that kept track of my breathing, and I had oxygen, but I went home.
They told my mom and dad that I would not walk, or talk, or do much of anything, they said I would need a feeding tube for the rest of my life. I guess they just didn't know me too well, because they were wrong about me.
I spent the first seven years of my life in and out of the hospital, I had pnemonia all of the time, and I needed more surgeries. I had surgery on my legs and my esophagus again, but it was the pnemonias that were the problem.
There were so many times when they thought I would die, and that last time when I was 7yrs old they were telling my mom to make sure everyone came in to see me because I wasn't going to recover this time. But I did, another miracle they say. The biggest miracle is that after that pnemonia I never got it again, ever. No one knows why I stopped getting it.
Its kinda like the seizures I used to get. I had hundreds a day, my whole body would get slammed into the ground face first, I had concussions a lot and had to be on a lot of medicine to try to control them. They told my mom and dad that it was just the beginning and that as I got older I would have more types of seizures and have them more often.
But then one day I got a really high fever, and after that I never had another seizures again. They weaned me off of my medicines and I still never had another seizure. No one knows how it happened, but they were using that word again, miracle; it was another miracle.
Anyway, I was so sick for the first seven years that I didn't have a lot of time or energy to learn the things that other kids do. I didn't learn to talk til I was 5 years old, and I didn't walk without a walker til I was about 6 or 7 yrs old. And I was around three years old when I learned how to eat real food and not use a feeding tube.
After that things went pretty good for a while. I still got sick a lot and missed a lot of school, and had a lot of breathing treatments and medicine to take, but I was doing good.
The older I get the better my lungs are getting. I hardly ever get sick like that anymore, but when I do it really gets bad and I miss a lot of school because of it.
But now that I'm getting older and bigger my legs are getting worse and my back is getting worse. They had to do surgery on my legs again last year and I was in bed for a few months. It sucked because it was summer time and I missed my whole summer vacation.
I use a wheelchair a lot now and I have a special chair that takes me up the steps in my house.
When I walk I can't go very far and I'm really slow. I fall a lot and my legs get the shakes. I usually have to hold someone's hand, the wall, or furniture.
I have a special bed, its like a hospital bed and I have to have the head part up because my back hurts to bad if I don't. I have limited depth perception, no peripheral vision, reactive airways, aspergers, scoliosis, and cerebral palsy.
I laugh a lot and make up jokes and try to make other people laugh too.
I decided to make a page on facebook to help raise awareness about guys like me.
People don't know enough about cerebral palsy, aspergers, and problems kids and young adults have from being born too early. And I want to help raise money for cerebral palsy charities.
Sometimes it is really hard because people don't understand why I'm slow and stuff and I get tired of the questions like why I can't do something. So I think this page will help people understand.
I hope a lot of people ask the questions here so I can answer them and then everyone will know the answers and I hope people share this page and like it so everyone can learn about this.
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