buckamanda
| Forum role | Member since | Last activity | Topics created | Replies created |
|---|---|---|---|---|
| Member | Nov 8, 2013 (12 years) |
- | 1 | 0 |
- Forum role
- Member
- Member since
Nov 8, 2013 (12 years)
- Last activity
- -
- Topics created
- 1
- Replies created
- 0
Bio
Amanda is a mother to two beautiful children and began writing, after her daughter was diagnosed with the rare disease, cystinosis. She started the blog Elsinosis: Living with Cystinosis to chronicle their story, advocate for her daughter and help other families in similar situations look for their silver linings. You can follow their story at www.elsinosis.com