emma4facs
emma4facs
| Forum role | Member since | Last activity | Topics created | Replies created |
|---|---|---|---|---|
| Member | Jan 6, 2012 (14 years) |
- | 1 | 0 |
- Forum role
- Member
- Member since
Jan 6, 2012 (14 years)
- Last activity
- -
- Topics created
- 1
- Replies created
- 0
Bio
My name is Emma, I'm 36 I suffer with Epilepsy and was diagnosed when I was 12. I have 5 children aged 8,7,6,4 & 2, whos are all diagnosed with the condition FOETAL ANTI CONVULSANT SYNDROME (FACS) in which the children suffer with Cerebral Palsy (2 of them possibly baby as well) All the children with the condition differ in symptoms such as Incontinence, Autism, Aspergers Syndrome, Sever Valgus Foot, Hypermobility of limbs, Athsma, Emotional and behavioural difficulties. Im raising awareness for this condition as it effects my family every single day and also thousands across the world. our Charity OACS (Organisation of Anti Convulsant Syndrome) and our new Trust FACT (Foetal Anti Convulsant Trust) is hoping to get the condition recognised and striving to help parents and children who deal with this condition. I hope to offer advice and a sympathetic ear. Welcome to my world x x x x MWAH X X X X
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