forestmelody
forestmelody
| Forum role | Member since | Last activity | Topics created | Replies created |
|---|---|---|---|---|
| Member | Mar 15, 2017 (9 years) |
- | 1 | 0 |
- Forum role
- Member
- Member since
Mar 15, 2017 (9 years)
- Last activity
- -
- Topics created
- 1
- Replies created
- 0
Bio
Having suffered from degenerative ME/CFS since I was about 13 or 14 I have, over time, become a living corpse. The illness is like creeping death, it takes all you value and if you try to find second rate replacements for the things you value the illness has taken from you then the illness just takes them as well. Only those will this illness can truly understand what it means when I say "I am exhausted", it is not just "a long day" it is your worse most tiring day multiplied 100 or 1,000s of time. It is that deathly sleep deprivation of not sleeping for days, it is my consent companion. In my ideal world I would live in a beautiful dense forest, it would always be dimly lit (the best for my light sensitivity) and while there would be gentle noises and occasionally wind, at those points when my noise sensitivity is at its worse the noise would cease. There would be no high pitched noises, those are the worst and it would be a true haven for the ME sufferer.
When I feel well enough I try to lose myself in the game Lord of the Rings Online, I can only do so from my daybed, which I would also sleep on overnight if I did not find it too noisy downstairs, traffic is infrequent but even with earplugs in it is too loud for me and it is impossible to block out all light downstairs, so to sleep, when suffering vertigo or need total quiet and darkness I have to retreat upstairs, makes toileting a little tricky but a commode and "safety gel" smell absorbing crystals (https://www.safetygel.co.uk/) makes things a little easier and I far prefer the toilet downstairs where I spend most of my waking existence.
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