okkesmama

Forum role	Member since	Last activity	Topics created	Replies created
Member	Apr 15, 2013 (13 years)	-	1	5

Forum role: Member
Member since: Apr 15, 2013 (13 years)
Last activity: -
Topics created: 1
Replies created: 5

Bio

German living in The Netherlands together with my husband and mother of four, writing about the rare disease Bohring-Opitz Syndrome (BOS) of my first born son at bohring-opitz.org and founder of the BOS support group on Facebook.

okkesmama

okkesmama

Mobile Apps

Social Media