thinkccsvi
thinkccsvi
| Forum role | Member since | Last activity | Topics created | Replies created |
|---|---|---|---|---|
| Member | Dec 17, 2011 (14 years) |
- | 3 | 0 |
- Forum role
- Member
- Member since
Dec 17, 2011 (14 years)
- Last activity
- -
- Topics created
- 3
- Replies created
- 0
Bio
Danielle Rhéaume (pr. ray-ohm) is the CCSVI Program Specialist for Vascular Access Centers, as well as Communications Chair for the Hubbard Foundation Board of Directors. She works closely with Dr. James McGuckin, Interventional Radiologist and bioengineer, on development and administration of VAC’s CCSVI program, which is proudly part of the Hubbard Foundation Multi-Center Registry for the Study of CCSVI. She also regularly plans special events, creates educational materials, and advocates for MS/CCSVI patients in the United States and Canada. As a citizen of both countries, she is uniquely positioned to understand the challenges patients experience on either side of the border.
Danielle is also uniquely positioned to understand both MS and CCSVI, because of being diagnosed at birth with a rare, complex and incurable venous malformation in her left foot. Throughout adolescence and adulthood, she learned what havoc problematic veins could wreak in the body. So, when she came across Zamboni’s CCSVI theory within days of receiving her MS diagnosis in May of 2010, she was already convinced there was a strong correlation between CCSVI and Multiple Sclerosis. She then committed herself to getting treatment, while also increasing knowledge of CCSVI within the MS community. Just a couple of days after being diagnosed, she pitched a story on CCSVI to Seattle’s ABC news affiliate, KOMO. That autumn, KOMO followed Danielle and fellow patient, Tarah Virgil, down to the Hubbard Foundation to document their successful and beneficial CCSVI procedures. That was when Danielle’s association with the Hubbard Foundation began. Today she is delighted and honored to be on their Board of Governance, where she is able to bring her writing experience and passion for CCSVI to the Communications Committee.
She has a Master of Fine Arts in Research-based Nonfiction Writing from Antioch University Los Angeles and a Bachelor of Arts in Communications from the Evergreen State College in Olympia, Washington. She is a published feature writer that most recently contributed to an academic collection studying the influence of popular music. She currently resides in Seattle, where she is an active member of the patient led advocacy group, CCSVI in Seattle. In her spare time, she enjoys spending time with her black standard poodle, as well as writing a book about her experiences discovering and returning the lost lyrics to U2’s album October.
http://thinkccsvi.com/danielle-rheaume-mfa/
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