beckylucytilley

Forum role	Member since	Last activity	Topics created	Replies created
Member	Apr 14, 2022 (4 years)	3 years	1	0

Forum role: Member
Member since: Apr 14, 2022 (4 years)
Last activity: 3 years
Topics created: 1
Replies created: 0

Bio

I am a proud Wife & rare Mama to 3 beautiful children, my two youngest children share a rare chromosome condition with me called Koolen-de vries syndrome. This blog is about our journey together as a family & mine as a writer & rare disease advocate. Enjoy sharing with us!

beckylucytilley

beckylucytilley

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