geobx12
geobx12
| Forum role | Member since | Last activity | Topics created | Replies created |
|---|---|---|---|---|
| Member | Jul 28, 2017 (9 years) |
- | 1 | 0 |
- Forum role
- Member
- Member since
Jul 28, 2017 (9 years)
- Last activity
- -
- Topics created
- 1
- Replies created
- 0
Bio
hello! my name is Aaliyah, I'm 4 yrs old and I've been diagnosed with a disease called juvenile polymyositis or JM for short. JM is a rare disease inwhich the exact cause is unknown. In US There are only approximate 2-4 out of million children who are diagnosed with this condition each year. Currently, I'm home schooled because of my treatments like chemo ,IVIG and whole bunch of other medicines. I enjoy reading books, listening to music and i also love learning too! right now listening to music helps me the most when i feel too much pain the music helps it to go away. my goal is to share my journey and inspire all the children battling `Dermatomyositis, Polymyositis and any other autoimmune disease By sharing every step of my journey. I Want to show all the fighter out there that it WILL be ok, don't give up! We are warriors and God has given us this battle because he knows WE can WIN!! Don't give up, HELP me raise Awareness and money for juvenile myositis. Go to CUREJM.ORG they do alot of amazing work to raise awareness and funds so we can finally FIND A CURE.
WordPress.com Forums 