llee0720
llee0720
| Forum role | Member since | Last activity | Topics created | Replies created |
|---|---|---|---|---|
| Member | Jul 31, 2020 (6 years) |
- | 1 | 0 |
- Forum role
- Member
- Member since
Jul 31, 2020 (6 years)
- Last activity
- -
- Topics created
- 1
- Replies created
- 0
Bio
I am a first-generation adult with Classic Phenylketonuria (PKU). I was born in the '50s to a big family. I am the 7th child out of 8. I have two older siblings who were born with PKU. They are mentally retarded due to not being put on the diet. Pku was in its infancy and not well known. I can remember as a child traveling with my younger brother and my parents to Denver CO. We were seeing PKU doctors. I also remember psychologists getting tested to see how I was developing as a child, not fun.
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